Until the dolphin flies and parrots live at sea... [entries|archive|friends|userinfo]
Alejandra (Lady Baroness of Xternetsa)

[ website | superaleja.org ]
[ userinfo | livejournal userinfo ]
[ archive | journal archive ]

Fun with labels [Nov. 10th, 2009|11:37 pm]
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[Current Location |United States, New York, New York]
[Current Mood | amused]

Labeling things can be useful, like and .

But sometimes it can go awry, like .
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Please Stand By [Sep. 18th, 2009|01:01 am]
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As posted on Nick's blog...


Please Stand By
Posted by – September 18, 2009

Image of Nick sleeping in his new room, shared with permission

On September 10, 2009, Nick Dupree was able to leave the rehab hospital in New York City where he had been living for approx. 378 days after moving from Mobile Alabama (well after his previous crusade), while waiting to get services and supports established to live in the community.

It’s a wait that’s shorter than many others, but longer than he’d expected or hoped would be the case. Luckily he is now home, and working on next steps, next battles to be fought.

To all those listening, supporting, and watching along the way, he gives thanks. He’ll continue to write and fight about things that are just and unjust as he adjusts to a new standard of living.

After he catches up on some sleep.
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Need something to do? [Aug. 31st, 2009|06:35 pm]
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[info]badgerbag has an excellent suggestion (via her Dreamwidth-self):

Here's a good task for anyone not afraid of a little Wikipedia editing.

A search on the phrase "confined to a wheelchair". Let's reduce that from 383 results to 0...
 

(Technically there should be 1 result left, since this one on disability is describing why "confined to" is not a preferred usage.)

Good idea! All you really need to do is replace "confined to" with "uses a"... a little change goes a long way.


Edit: She also discovered --

Oh and when we get that number down there's wheelchair-bound to stabbity stab stab. (at 300+)

and wheelchair bound with no hyphen at 493 instances!
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Yogi In a Box [Aug. 9th, 2009|01:44 pm]
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Saw this guy at the seaport last weekend, and videoed the last part of his act. Watch him get in the box...

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NYC Council Hearing: June 17, 2009 [Jun. 17th, 2009|05:55 pm]
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Alejandra Ospina provides testimony on behalf of Nick Dupree, in support of the Community Choice Act

NYC Council Hearing on Aging; Mental Health, Mental Retardation, Alcoholism, Drug Abuse & Disability Services

City Hall Council Chambers, Manhattan

Part of a set: NYC Council Hearing: June 17, 2009


Update: You can listen to the radio show I participated in the following day, streamed here.


My testimony: )

Nick's testimony: )
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If Facebook says it... [Jun. 16th, 2009|04:24 pm]
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It must be true:


 Facebook update reads: Alejandra Ospina  will have double testimony to present to the NYC Council in support of the Community Choice Act on Wednesday morning, and will speak to the Largest Minority Radio Show (http://www.largestminority.org/) on WBAI on Thursday.

Life is nothing if not interesting, these days.

If you get to listen on Thursday, let me know.

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Catching up with the monster [May. 30th, 2009|03:32 pm]
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Catching up with the monster
Originally uploaded by superaleja.
Just because I follow the blog, is no excuse not to finish reading Schuyler's Monster, which I'm glad I'm finally able to do. Because I want to be like her when I grow up. And her dad is okay, too.
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Radio interview about GimpGirl Community (listen online, live or archived) [May. 19th, 2009|05:16 pm]
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[Current Mood | busy]

As posted in our calendar:


GimpGirl Community ([info]gimpgirl) Representative Alejandra Ospina will speak with radio host Dan Windheim (based in Rockland County, New York) on his show, "Dialogues With Dan", which focuses on issues that affect people with disabilities. They will talk about the history and focus, and future of our community, and what makes us who we are.

The interview will take place on Tuesday, May 19th, at 6:30 PM EDT/3:30 PM PDT (if you are in another time zone, check here to find out the time in your area).

Tune in online at: http://www.rocklandworldradio.com/program/dialogues/

If you're not able to tune into the live broadcast, the interview will be available for later listening, in the show's online archive.

Thanks for listening!
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Fourth "Nick's Crusade" Video Blog - May 7, 2009 [May. 8th, 2009|03:32 am]
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Transcription (as captioned in the video):

Read more... )

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Nick's Crusade - Guest Video Blog - May 3, 2009 [May. 3rd, 2009|08:49 pm]
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So I did a guest "vlog" for Nick's blog today. I don't think I'm a vlogger. Transcription is below...


Read more... )
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Disablism sure isn't disabled at all [May. 1st, 2009|01:21 pm]
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[Current Mood | pensive]


Every person with a disability has encountered or experienced disablism/ablism.  Subtle and not-so-subtle discrimination based on the fact that they are different, that they are perceived as less because something about their body is different from the norm.

As a lifelong member of the club, a visibly disabled person with my visibly disabled person wheelchair (and my other, less visible disabilities), I like to think I've done a good job straddling the different worlds. I like to think that I have a solid presence in my local disability community, appreciation of the issues that affect people with disabilities, and that in my own ways, I do what I can to make a difference and help others (particularly when it comes to my involvement with things like the GimpGirl Community and other things online). I feel like I can also exist comfortably in world where people  don't necessarily know or talk about "gimpy" stuff...  I try to mix well with all kinds of people, at all levels of existence. I think I do a good job.

Though my life's path has wandered a lot (not to mention my own self-image),  I know that generally I am regarded as intelligent, useful, forward thinking, with potential for lots of things. I'm okay with that potential.

One of the things that's important in my life right now is my partner. He is a man with a disability, an advocate, a person currently stuck in an institutional setting, waiting to be able to live in the community with proper supports. The fact that he has to fight for it (along with thousands, millions of others) illustrates just how inherently disablist/ablist our societies are. Though there are people who know and believe fervently that it shouldn't be this way, and  in the U.S., potential legislation like the Community Choice Act that could make a real difference, it will take something more to shift the way things work. The way we are perceived on a grander scale.

 With my partner in the hospital for the last seven months, we've had quite a roller coaster ride. Right now, I'm his primary support system (though not for lack of trying to expand the circle), in part because he is originally not from this city. Once he is home where he belongs, I know that that will change. But now, and in the future, and always, disablism will make it so that my partner, with his sharp mind and wit, but impaired communication (and non-optional ventilator accessories), will almost never be taken seriously by someone the first time around. And I will almost never be taken seriously as his partner, as a caregiver, as someone who can do something useful, because my legs don't work either. 

 We'll always have some version of our recent experience with a nursing administrator at the hospital, who said, during an emergency situation, that my continued presence until the situation was resolved  wouldn't really make a difference anyway, since I couldn't do X or Y or Z tasks that nurses would do. Never mind that convoluted hospital policies make it so I end up doing a lot of the things nurses won't do anyway...

We will march on. We will build our lives together, we will continue our lives as individuals, affected, shaped, and molded by our disabilities, but not defined by them. We will make our mark on the world together, separately, and with others, even if much the world chooses to interpret those marks through the misinformed screen of "ability", which in the end, only means what you make of it.
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Nick's Crusade & the Community Choice Act [Apr. 23rd, 2009|03:47 pm]
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Transcription (as captioned):

Hello, and welcome to Nick's Crusade blog. This is a video blog of day 236 here in the hospital. I'm here in the hospital because I'm waiting for community services, and the [Medicaid] waiver that I'm on just seems to add another layer of complexity and bureaucracy, and makes things take longer...

And it's very frustrating to be stuck in a hospital when the only reason is, you just need services in the community. That's why it's so important that we pass the Community Choice Act as soon as possible.

I hope that soon I'll get out in the community, I'll get into my apartment with my partner, and that we can continue to advocate for the CCA, and for housing. There are so many people here that don't need to be here, that are only here because they don't have housing.

My voice is a little rough with a new trach that I got in August, here in this hospital, but I hope that soon, my normal voice, (which is higher pitched, and a little Southern) will be back.

Keep reading the blog for more updates.

Thank you, and I love you all.

Nick's Crusade
nickscrusade.org


This video is also on YouTube: youtube.com/watch?v=p2SUnllCSEk, which might be more accessible to some.

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Major outage in the Bay Area (AKA internet and phone fail) [Apr. 9th, 2009|01:40 pm]
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[Current Mood | curious]

As of this morning: There is a major telecommunications outage in the Bay Area of CA: Thousands of people and businesses in parts of Santa Clara, Santa Cruz and San Benito counties are without telephone service, both landline and cellular, because of a cut fiber-optic cable, officials said

No idea when it will be restored (hopefully soon?), but I do know that the following things are down in my (and possibly your) world:
  • My website and email (and several stragglers who have mail on my domain)
  • All sites and email hosted on our private server, includes but not limited to --
  • The GimpGirl Community (website/email)
  • The Peace of Heart Choir (website)
  • Nick's Crusade (website/email)
  • Other stuff I'm not remembering
  • Tons of other sites and servers and people that have nothing to do with me
So, let's see how long it takes to un-screw things.  I'm also at superaleja @ gmail, in the meantime.


EDIT: So things have been mostly resolved, or at least working again after 12+ hours of downtime, and the original news link above has been updated to reflect the fact that the outage was caused by sabotage -- exciting! Some moron cutting wires, which may or may not have something to do with a labor dispute involving the telcos. Hopefully someone gets caught and punished.

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Sing After Me [Feb. 11th, 2009|11:00 pm]
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[Current Mood | amused]

 

Classic Sesame Street: Sing After Me (Grover/Madeline Kahn)

From Episode 1839: Sesame Street has redone this song (with various performers) at least half a dozen times, but this is the original that inspired the others. Leave it to a comedian like Madeline to tease Grover with those unsingable notes near the end...

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More on the LJ purge [Jan. 7th, 2009|09:09 am]
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From [info]foxfirefey : LJ in 2009 -- The Grim Purge notes:


Valleywag's original numbers of 20 out of 28 let go, and those citing them, are not accurate. The true numbers I hear are more like 13 let go, 17 kept in total, and 12 let go and 12 kept in SF--in total, around 20% of LJ staff according to their PR correspondents. Always be skeptical of Valleywag.
 
And more details and links therein.

 
 
 
 
 
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LiveJournal lays off 20 out of 28 employees [Jan. 6th, 2009|09:53 am]
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The bubble in social networking has burst, decisively. LiveJournal, the San Francisco-based arm of Sup, a Russian Internet startup, has cut about 20 of 28 employees — and offered them no severance, we're told.
 

Source: Valleywag, The Russian Bear Slashes a Social Network (1/6/09)

So what happens next?


ETA:
  This may be helpful if you're looking to make a backup of your journal entries:
FAQ Question #8: How do I download all of my journal entries?

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Yes, we did. [Nov. 5th, 2008|02:13 am]
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[Current Mood | enthralled]

Happy and hopeful about the outcome of our amazingly historic presidential election.

I'll try for more soon.
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GimpGirl Community On-line Dance Party, 7/31, 6 PM SLT/Pacific [Jul. 31st, 2008|06:28 am]
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This is an online, international event that will be held in Second Life, but is accessible to those not on Second Life via IRC chat. See below for details. This event is also on our calendar.
***

GimpGirl Community is having an end-of-the-month party on Thursday night! Our fave GimpGirl Ally Second Life DJ Namav will be playing his mix of rock, blues, funk, and your requests! May be a contest or two! EVERYONE is welcome.

Thursday, July 31 from 6:00 - 8:00 PM SLT/Pacific.
(9:00 PM Eastern Time, for other timezones, click HERE)

Second Life Location:
http://slurl.com/secondlife/3DE/172/24/23
You should land on the dancefloor on our roof!


IF YOU DON'T HAVE ACCESS TO SECOND LIFE:
You can still attend this party online via IRC, and listen to the music (see below). To visit our IRC/Second Life chatroom, go to:
http://chat.on.quickfox.net/GimpGirl

To LISTEN TO THE MUSIC online (if you're not on SL), go here:
http://purple.neostreams.info:11188/listen.pls
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Un verano en nueva york [Jul. 18th, 2008|06:04 am]
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[Current Music |"Un Verano en Nueva York", El Gran Combo]


If you grew up as a Spanish speaker, you're probably going to know this song.  Particularly if you grew up in the U.S., and especially, well, in New York.  The title, after all, translates to "(A) Summer in New York".  The video is a lot of 70s Gran Combo love, which is okay, because without them, every kid who ever went to a hispanic house party three generations later wouldn't have this song in their blood.  I can almost see little old me blasting this one out of a slow-moving car, because that's what you're supposed to do.
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Pug, pug [Jul. 12th, 2008|04:20 am]
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[Current Mood | amused]

I want to catch up with the show Extras now.  Or have Bowie write a terrible song about me.

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Barack Obama on Religion [Jun. 15th, 2008|05:34 pm]
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[Current Mood | optimistic]

 I'm not sure exactly when  or where this speech was delivered, but the YouTube video (via [info]ishottheserif) was uploaded at the end of May:

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Next @ the disTHIS! Film Series: HEAVY LOAD: A FILM ABOUT HAPPINESS (Wed, June 18) [Jun. 11th, 2008|04:13 pm]
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Next @ the disTHIS! Film Series: disability through a whole new lens

HEAVY LOAD flyer image

HEAVY LOAD: A FILM ABOUT HAPPINESS
Followed by Q & A the band and gig with 4 Wheel City @ Arlene's Grocery!
SPECIAL DATE: Wednesday, June 18th!
Link: http://www.disthis.org/June-18-2008.htm

Join disTHIS! for the NY premiere of HEAVY LOAD: A FILM ABOUT HAPPINESS, a feature documentary about the UK’s only 'mixed-ability' punk band prior to the movies premiere on the Independent Film Channel (IFC), June 23rd!  IFC and other  media outlets will be there to document the film screening and post-screening concert at Arlene's Grocery for broadcast!
 
HEAVY LOAD: A FILM ABOUT HAPPINESS opened to rave reviews last March at the SXSW Festival in Austin, TX. Rural England’s answer to the Ramones, the band includes musicians with and without developmental disabilities. True to their punk roots, the band was recently considered “too hardcore for BBC Radio Four” (the English equivalent of NPR) when a segment on the band was axed from a story about disability and self-determination.
 
The movie chronicles a year in the life of the band as they hit the road and attempt to navigate a combustible flux of ego, ambition, and fantasy that fuels any emerging act on tour.
 
The band will also be bringing their STAY UP LATE campaign to the United States. STAY UP LATE fights for disabled folks who want to go out to clubs, etc. but often end up going home early because their support workers don't want to work late. Fight for your right to party!  Be sure to catch the band's first gig in NYC. This will be a rare opportunity to attend one of their energetic, and sometimes chaotic, live performances stateside - which has earned them a cult following in the UK!
 
SPECIAL DATE:  Wednesday, June 18th
WHERE: DCTV, 3rd Floor Screening Room
87 Lafayette Street (By Subway: 6, N, R, Q, W, J, M, Z to Canal Street; go two blocks south) between Walker & White.
START TIME: Doors open 5:30pm. Screening begins promptly @ 6pm!
DONATION: A bargain @ $5!!!
DON’T MISS OUT! To RSVP and reserve YOUR seat, call: 212.284.4160 or email: disthis@dnnyc.net
 
“Don’t be misled by the title. HEAVY LOAD: A FILM ABOUT HAPPINESS plays like Metallica’s SOME KIND OF MONSTER meets HOW’S YOUR NEWS,” says disTHIS! curator, Lawrence Carter-Long. “It’s everything you want in a band movie with a disability twist. Not to be missed!”

disTHIS! movies, talkback sessions and related events are open to the public. $5 donation. There will be a discussion with the band and film director following the screening! HEAVY LOAD: A FILM ABOUT HAPPINESS is captioned. ASL interpretation available upon request. Space is wheelchair accessible. There is a cash bar for drinks, but space is limited to the first 65 people!  Presented in association with the Realabilities NY Disability Film Festival.
 
After the screening, STAY UP LATE with HEAVY LOAD as the guys make their NYC concert debut @ Arlene’s Grocery (95 Stanton Street) with local krip-hop favorites FOUR WHEEL CITY!!!  Concert tickets only $8! Get directions here:
http://www.hopstop.com/route?zip2=10002&address2=95+STANTON+ST&mode=s

About us: The disTHIS! Film Series, a program of the Disabilities Network of NYC in association with DCTV, is a showcase of festival quality independent and international short, documentary and feature films with disability themes beyond clichés. disTHIS! movies are always provocative; never what you’d expect. No handkerchief necessary, no heroism required. This is disability through a whole new lens!
 
The disTHIS! Film Series is made possible by the generous support of The Christopher & Dana Reeve Foundation, the Screen Actors Guild, the NYU Community Fund, the United Way and our members.
 
For more information & to sign up for exclusive email updates, go to: http://disthis.org

Heavy load profiles image
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Nick's Crusade [Jun. 9th, 2008|02:45 pm]
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Nick's Crusade
Originally uploaded by superaleja.
In 2003, Nick Dupree made a major impact with his campaign to change Medicaid in his home state of Alabama (U.S.), so that he and others like him could continue living in the community and out of a nursing home, dubbed "Nick's Crusade."

Though he has worked hard, Nick realizes that he needs to find a new place to live safely and independently so that he can continue to work towards his goals as an individual and an activist for change in the disability community.

Learn more about his new campaign at Nick's Crusade : Project Freedom. Your thoughts and ideas are welcomed!

(Photo credit: Kii Sato, Mobile Register)
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Women with disabilities and healthcare - a discussion (cross-posted) [May. 1st, 2008|08:28 pm]
In May, GimpGirl Community (AKA [info]gimpgirl ) will be talking about women with disabilities and healthcare. We'd also like to open the topic to others outside our group.

What are your experiences with healthcare as a woman with a disability? Tell your story, or learn from others. Share resources, opinions, myths, and facts.

Healthcare for women with disabilities varies greatly from place to place, and culture to culture. Most agree that women with disabilities are still greatly underserved. And our needs are as complex as we are, varying by age, disability, and access to healthcare, among other things.

We want to talk about the issues surrounding women with disabilities and healthcare. During the month, we'll also have a chance to make our opinions known to people in the medical profession (based in the U.S.), and those who are studying to become medical professionals. We can give them a head start to understanding the needs and barriers faced by women with disabilities when it comes to receiving respectful and appropriate healthcare.

Feel free to share your thoughts in this forum, or any of our communities online (see GimpGirl Communities for a list of where you can interact).

We'll be having our first online support meeting of the month on Friday, May 2 (see our website calendar or this post for details). Join us and start the conversation, which will undoubtedly lead to many other topics along the way.

Here are a few links which may be useful, or worth discussing. Feel free to suggest others (particularly with info about issues outside of the U.S.):

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GimpGirl Presentation @ Dreams Fair on Second Life [Apr. 20th, 2008|11:32 am]
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GimpGirl Presentation
Originally uploaded by complicitytheory.
Here is a picture of me, in front of our giant TV screen, as [info]jennylin and I talk about [info]gimpgirl (AKA GimpGirl Community), at the Third Annual Dreams Community Fair in Second Life.

"The Third Annual Dreams Community Fair highlights health/support, educational, and artistic groups in SL. There are over 60 informational booths and close to 80 events scheduled by those groups and others."


More photos in the GimpGirl Community Flickr group.
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In solidarity [Apr. 3rd, 2008|06:20 pm]
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[Current Mood | tired]

With my Canadian friends (slightly NSFW)...



I love you all.
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Online Avatar & Identity Presentation (3/30) [Mar. 14th, 2008|06:03 pm]
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f you're interested in Second Life, IRC, and/or issues of identity (with and without disability), you are invited to an online seminar I am co-hosting (with [info]jennylin, but not presenting) entitled:

"Avatars, Identity, and the Expression of Disability" on Sunday, March 30th from 12:00 - 1:30 PM SLT/Pacific Time (3:00 PM Eastern Time)
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"LOL" [Mar. 1st, 2008|02:48 am]
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[Current Mood | amused]

The "Blog" of "Unnecessary" Quotation Marks


Image of sign - Caution: 'SLIPPERY' when wet

Image of sign in a store: 'Parents' You Are Responsible For Your 'Childrens' (SAFETY) Do not let them Run 'Free' or 'Leave' them 'Unattended' 'In Shopping Carts' While Shopping.

Image of sign: PLEASE 'LOCK' RESTROOM 'BEHIND' YOU

(via Catspaw)
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I need to be like this guy [Feb. 22nd, 2008|04:29 pm]
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[Current Mood | snow]

Man Uses Wheelchair To Shovel Out

You'd think this is an accessory that would be semi-available by now, but it isn't. Anyone want to help me turn into a snowplow? I'm only half joking... when it snows in any significant amount, I'm messed up for a week or more (along with plenty of other PWDs) because snow gets piled at curbs and bus stops, making it hard to get anywhere.

The article is old and the video link is dead, but
he has the video on his website. Here someone else on YouTube also using a motorized chair as a plow.
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As posted to [info]gimpgirl: Topic of the month: What does GimpGirl mean to you? [Feb. 17th, 2008|11:43 pm]
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[Current Mood | calm]

As posted to [info]gimpgirl and [info]no_pity (in edited form):

GimpGirl celebrates its 10th Anniversary!


Started in February 1998, the GimpGirl Community has been a long-time resource for women with disabilities.  We are currently gearing up to re-launch our new website, which has been on a bit of a hiatus. We're also becoming active on Facebook, as well as MySpace and the virtual community of Second Life. (See our website for more details, including how to get to our Second Life Open House, happening TODAY at 4:00 PM SLT/Pacific)

Our awesome LiveJournal community has been our mainstay for a long time, and we'd like to hear your thoughts as we move into our next decade...

TOPIC OF THE MONTH: What does being a "gimp girl" (AKA woman with a disability) mean to you?

For as long as the GimpGirl Community has been around, and long before that, people with disabilities, and especially women, have thought, written and talked about their identities -- how having a disability and identifying as a woman shapes (or doesn't shape) their lives.

What does it mean to be a GimpGirl for you? GimpGirl is a phrase used by our community, and of course it's not one that everyone uses. If you prefer a different phrase, what is it, and why?

EDIT: 
Look under the cut to find out more about today's excellent GimpGirl open house event on Second Life!

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Carol Burnett, Julie Andrews, Groucho Marx [Feb. 1st, 2008|03:40 pm]
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[Current Mood | amused]

I was looking at random journals, thanks to the no-doubt soon to be controversial new Explore LJ feature, and stumbled across [info]oldhollywood.  As with many communities, not every post is great, or even good.  But folks have linked to some nifty things, like:

Carol Burnett and Julie Andrews at Carnegie Hall (1962)


and

Groucho Marx in a scene from "Monkey Business"



I could watch this kind of stuff all day... which doesn't really mean anything, because both are very different kinds of performances, with the common thread being "made well before I was born".  Which includes just a few years of television and media, you know? 
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Don't you cry no mooooore..... [Jan. 29th, 2008|11:58 pm]
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[Current Mood | amused]
[Current Music |Kansas, of course]

Please watch the following video from Japan (via [info]lilituc):



You're welcome.
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Wi-Fi in the dark [Jan. 29th, 2008|04:27 pm]
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Wi-Fi in the dark
Originally uploaded by superaleja.
Apparently I've become one of those people who seeks approval by submitting photos to groups on Flickr.

Well, only one group (so far, the Diabolic Lovers of Low Res and Booze). And only my "low-res" (camerphone) photos. My "real" photos, from the real camera, are not yet fit for judgment, even from a fairly easygoing group like the DBOLRLers (who only do low-res anyway).

They liked this photo I took on the bus, at night from San Jose to Santa Cruz, but they voted out my Big M at the Santa Cruz Museum of Art and History.  Who knows how my next submission will fare...
 
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The Library of Congress put over 3100 pictures on Flickr [Jan. 17th, 2008|01:00 pm]
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[Current Mood | curious]

The Library of Congress put over 3100 pictures on Flickr:

Library of Congress staff often make digital versions of our popular image collections available online as quickly as possible by relying primarily on the identifying information that came with the original photos. That text can be incomplete and is even inaccurate at times. We welcome your contribution of names, descriptions, locations, tags, and also your general reactions.

It's divided into two different sets:

1930s-40s in Color:

These vivid color photos from the Great Depression and World War II capture an era generally seen only in black-and-white. Photographers working for the United States Farm Security Administration (FSA) and later the Office of War Information (OWI) created the images between 1939 and 1944.

News events in the 1910s:

Welcome to the daily news scene from almost a hundred years ago, as photographed by the Bain News Service in about 1910-1912. We invite your tags and comments! Also, lots more identification information. (Most of these old photos came to the Library of Congress with very little description.)

This selected set of 1,500 photographs is from a large collection of almost 40,000 glass negatives. The entire collection spans 1900-1920 and richly documents sports events, theater, celebrities, crime, strikes, disasters, and political activities, with a special emphasis on life in New York City.
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Facebook says... [Jan. 5th, 2008|01:24 pm]
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[Current Mood | indifferent]

You have a How are you disabled invitation.

__________________ sent an invitation using How are you disabled?:
______________ wants to share the "How are you disabled?" quiz with you. How disabled are you?



Um... no.

I'm for the disability experience being a part of social networking, but that just rubs me the wrong way.

Should it?
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Ready to Flock [Dec. 22nd, 2007|02:54 pm]
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[Current Mood | curious]

So [info]gomer43, my lovely adopter-of-all-things-geeky friend.. has convinced me to try using Flock as my browser.  Flock integrates all the social networking sites and feeds that everyone is hip to at the moment -- Flickr, Facebook, Twitter, YouTube, del.icio.us, etc. And even this here LiveJournal, to which I am posting through the Flock interface. It's not fully integrated, but not that bad either...

Since I actually have accounts on many of the sites and services it works with, good internets sheep that I am, and at least 100 sites I read via RSS, I figured I might as well give it a try.  It feels a little like overload at the moment, but the truth is that I usually have a ridiculous number of tabs open in Firefox, plus an extra application or 2, to keep up with those things anyway.  Everything in one place can't be that bad an idea, at least in principle.

Anyone else managing their information overload with Flock, or another all-encompassing method?


Blogged with Flock

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Peace of Heart Choir - Winter 2007 Celebration Fundraising Concert (12/16/07) [Dec. 3rd, 2007|02:48 pm]
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[Current Mood | busy]

Want to come hear me sing?  Great group, great cause, and.... me!!    Check us out, and feel free to spread the word even if you can't attend.  Donations/volunteers always welcome!




POHC Winter logo
Sunday 
December 16, 2007
2:30 – 4:30 PM

Hunter College, North Building,
Room 424
Entrance on East 69th St., near Lexington Ave.          
New York City

The Peace of Heart Choir formed in response to the tragedies of 9/11 and performs multiple free concerts for NYC non-profits, shelters, service providers, hospitals, and events, as part of our mission of providing healing, diversity, community building and mutual understanding through music.

 

 

You are cordially invited to our Winter 2007 Celebration Fundraising Concert

ROCKIN' IN THE NEW!

Proceeds enable us to continue giving multiple free performances
for non-profits, shelters, hospitals, service providers and cultural events.

Performing our Winter 2007 a cappella repertoire from the following traditions:


*Holiday Songs from Latin American, Caribbean
& African Traditions
*
*Hebrew & Ladino*
*American Pop & Soul*
*Original Compositions*

And featuring:
The POHC Bake Sale and POHC Souvenir Merchandise!

Tickets:
$18 in Advance; ($19 online)
$20 at the Door

General seating; wheelchair access

For advance sale tickets: Click here
email: peaceofheartchoir@yahoo.com;
or call: 212-252-3191

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Next at the disTHIS! Film Series -- Wednesday December 5th! [Dec. 2nd, 2007|01:37 am]
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Next at the disTHIS! Film Series -- Wednesday December 5th!
The Keys To The House (Le Chiavi di Casa)

Favoring subtlety over cheap sentimentality, Italian director Gianni Amelio tackles difficult material with a sublime touch, and offers a powerful cinematic treatise on mental illness, physical disability and child abandonment in the award-winning, THE KEYS TO THE HOUSE.

Gianni (Kim Rossi Stuart) plays a father who abandoned his mentally and physically disabled son, Paolo (Andrea Rossi), at birth. Paolo’s mother died during childbirth, so an aunt and uncle raised him. Fifteen years later, a guilt-stricken Gianni gets back in touch with the son he’s never met, offering to accompany him on a medical tip to specialist clinic for disabled children in Berlin. Paolo cautiously agrees, but the reunion is anything but easy. At the clinic, Gianni meets the mother of another disabled child and the interaction between the parents and children provides a thought provoking, thoroughly unsentimental dissection of the effects of disability on every member of the family.

KEYS TO THE HOUSE triumphs in many ways, not the least of which by giving rarely afforded screen time to two real disabled actors. Andrea Rossi is the disabled actor who plays Paolo. The other child also has c.p. and is played by the protagonist of the book on which the film is based, Born Twice by Giuseppe Pontiggia.

Throughout the film, director Amelio handles potentially touchy subject matter with rare dignity and respect, emotionally honest but never condescending, and ultimately offers a cogent statement that lingers long after the final credits roll.
Kenneth Turan of the Los Angeles Times wrote:
"Takes a story that could be turned into the most florid kind of tear-jerker and ... tells it with an exactness and restraint that makes it powerfully effective."

Tom Dawson of the BBC reported:
"Intelligently steers clear of lachrymose speeches, swelling orchestral music, and cheap redemption."

V.A. Musetto of the NY Post concluded:
"Deals with the sensitive subject in a mature manner, refusing to descend into Hollywood-style schmaltz."

Awards & Recognitions
-- Best Foreign Film, Turia Awards (2006)
-- Best Director, Italian Nat’l Syndicate of Film Journalists (2005)
-- Best Film in 2 categories, Venice Film Awards (2004)
Keys To The House (Le Chiavi di Casa)
Italy, 2004

Running Time: 1:11
Language: Native Italian with English Subtitles
Director: Gianni Amelio
When: Wednesday, December 5th
Where: DCTV, 3rd Floor Screening Room. 87 Lafayette Street (By Subway: 6, N, R, Q, W, J, M, Z to Canal Street; go two blocks south) between Walker & White.
Time: 6:30 to 10:00 pm. Screening starts @ 7pm
Suggested Donation: $5
disTHIS! movies, talkback sessions and related events are open to the public. $5 suggested donation. This film is presented in native Italian with English subtitles. ASL interpretation available upon request. Space is wheelchair accessible. Snacks are provided and there is a cash bar for drinks, but space is limited to the first 65 people! Recent articles in the Tribeca Trib, New York Nonprofit Press and the NY Times -- and YOUR support -- have filled screenings to capacity. DON’T MISS OUT! Call 212.251.4092 to reserve YOUR seat or email: disthis@dnnyc.net

The disTHIS! Film Series, a project of the Disabilities Network of NYC in association with DCTV, is a monthly showcase of festival quality independent and international short, documentary and feature films with disability themes audiences are unlikely to see elsewhere. disTHIS! movies are always provocative; never quite what you’d expect. No handkerchief necessary, no heroism required. This is disability through a whole new lens. disTHIS! is made possible the generous support of The Christopher & Dana Reeve Foundation, members of the Disabilites Network of NYC and our audiences.
For more information and to sign up for regular email updates, please go to:
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Song of the Day: [Nov. 30th, 2007|01:07 pm]
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[Current Mood | amused]

Re: Your Brains, by Jonathan Coulton

Heya Tom, it’s Bob from the office down the hall
Good to see you buddy, how’ve you been?
Thing have been OK for me except that I’m a zombie now
I really wish you’d let us in
I think I speak for all of us when I say I understand
Why you folks might hesitate to submit to our demand
But here’s an FYI: you’re all gonna die screaming

All we want to do is eat your brains
We’re not unreasonable, I mean, no one’s gonna eat your eyes
All we want to do is eat your brains
We’re at an impasse here, maybe we should compromise:
If you open up the doors
We’ll all come inside and eat your brains


Listen and read more: here, and all about the new French version here.
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[cross-posted] EARN Recruiting Jobseekers with Disabilities (U.S.) [Nov. 30th, 2007|11:35 am]
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EARN Recruiting Jobseekers with Disabilities
for
Federal Government Careers with Equal Employment Opportunity Commission


  
EARN, a nationwide free service of U.S. Department of Labor’s Office of Disability Employment Policy, is here to connect employers with workforce talent and disability employment resources.    

Jobs Available In:

       




To view full job descriptions and search other jobs posted: jobsource.earnworks.com 



EARN Ph:    1-866-327-6669 (v/tty)
Email:    earn@earnworks.com
Website:    www.earnworks.com
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Travel and people with disabilities (cross-posted) [Nov. 20th, 2007|03:23 pm]
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[Current Mood | curious]

It's a topic I often wonder about.  And I know other people are thinking about it as well, given the number of sites, blogs, and other activity that has cropped up online around accessible travel.

Specifically (as a woman in fairly decent health who uses a motorized wheelchair and lives in the U.S.), my interest in travel was rekindled recently when I came across the website of a group called Wilderness Inquiry.  Paragraphs like this one caught my eye:

Our trips are integrated, meaning that each group typically includes people who have a disability and those who do not. What brings them together is their interest in doing a wilderness adventure. We do whatever it takes to make our trips accessible, but disability is not the overt focus. We just want to get out there and enjoy the wilderness together.

Actually, if their trips really work that way, it kind of blows my mind.  And they even have a financial aid program.  So now I am definitely interested in exploring this as a possibility.

I have traveled a bit in the last few years, within the country for less adventurous reasons, and internationally (to the U.K.) on an exchange sponsored by a disability-oriented organization called Mobility International USA.  But I don't think I've found a travel situation that seemed just the right mix of adventure and inclusion (and affordability) yet, and I'd like to try.

So I wonder about other people's travel experiences... with either of the groups mentioned, with other groups, or independently.  Within your country, or internationally.  Or if you haven't traveled, what you'd like to be able to experience...

I know I'm not the only one with an itch to travel.
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The Harrow Anthology: Midnight Lullabies [Nov. 10th, 2007|11:05 am]
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[Current Mood | pleased]

My friend Jason ([info]complicittheory) is an editor of this anthology published by The Harrow, a literary magazine devoted to publishing original and complete works of fantasy and horror.  It is now available on Amazon, and all proceeds go to Doctors without Borders.  Check it out!



picture-5.jpg


Midnight Lullabies features 15 poems and 14 stories revolving around the theme of childhood nightmares that continue to haunt into adulthood. Children's book author Tim Wynne-Jones wrote the introduction for us. Like our previous anthology, Fear of the Unknown, (published by Echelon Press), this anthology is illustrated, this time with classic — and creepy! — children's book illustrations kindly donated by The Osborne Collection of Early Children's Books.



Amazon.com: Midnight Lullabies; Kfir Luzzatto, Dru Pagliassotti, Tyra Twomey, Jason Nolan and Yuka Kajihara editors.



List Price:$15.99
Paperback: 246 pages

Publisher: The Harrow Press (October 29, 2007)
Language: English
ISBN-10: 1419679783
ISBN-13: 978-1419679780
Product Dimensions:
8 x 5.2 x 0.6 inches
Shipping Weight: 12.2 ounces (View shipping rates and policies)
Amazon.com Sales Rank: #95,720 in Books (See Bestsellers in Books)



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LJ Mobile, you say... [Nov. 8th, 2007|01:44 am]
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So here's my test of the new LJ mobile client for the Palm platform. So far, way better than trying to navigate the LJ update page on the mobile browser. And better than text LJ. But I'm sure I'll find something to complain about soon.

Hey, private messaging and editable comments are here, too. About time.
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Remember to fall back... [Nov. 3rd, 2007|10:34 pm]
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[Current Mood | cold]

It's been a little confusing this year...

At 2 a.m. on November 4, 2007, groggy Americans will turn their clocks back one hour, marking the end of Daylight Saving Time (DST).

The federal law that established "daylight time" in the United States does not require any area to observe daylight saving time. But if a state chooses to observe DST, it must follow the starting and ending dates set by the law. From 1986 to 2006 this was the first Sunday in April to the last Sunday in October, but starting in 2007, it is observed from the second Sunday in March to the first Sunday in November, adding about a month to daylight saving time. (See: New Federal Law.)


Source: http://www.infoplease.com/spot/daylight1.html


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Report: Many U.S. Parents Outsourcing Child Care Overseas [Nov. 1st, 2007|02:16 pm]
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[Current Mood | amused]

Report: Many U.S. Parents Outsourcing Child Care Overseas


Oh, you crazy Onion.
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Next @ disTHIS! Dance Inferno - Wednesday, Nov 7th [Nov. 1st, 2007|01:21 am]
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Image: Phoenix DanceImage: Outside InImage: Bruce


When:

Wednesday, November 7
Time:
6:30 to 9pm.
Screening starts promptly at 7pm.
Where:
DCTV @ The Firehouse
3rd Floor Screening Room
87 Lafayette St (between Walker & White)
Closest subway stops: N/Q/R/W, J/M/Z, or 6 to Canal Street. DCTV is located two blocks South of Canal Street in NYC.
VIEW MAP
Cost:
$5 Suggested Donation

Join disTHIS! Wednesday, November 7th as we showcase a series of acclaimed short films that remind us "dis can dance." Culturally speaking, disability is thought to be many things ... tragic to some, heroic by others, inspirational by almost every reporter to ever take up a pen, but do the words celebratory, joyous, funky, sexy or exciting come to mind? In short, has "Gimp Got Groove?" You bet!

Full info:  http://disthis.org/November2007.htm
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[cross-posted] Music Within - In Theaters October 26 (U.S.) [Oct. 24th, 2007|10:01 pm]
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Music Within traces the true story of Richard Pimentel, a crusader for human rights who was instrumental in getting the Americans with Disabilities Act passed into law. When he didn’t make a college debate team, Richard (played by Ron Livingston) headed to Vietnam for a tour of duty. There, a bomb blast caused him to lose his hearing. Learning to read lips, Richard returned to college and met and became close friends with Art Honneyman (played by Michael Sheen), an intelligent -- and funny -- man with cerebral palsy. After witnessing how Art was treated in public, and after seeing how difficult it was for his fellow Vietnam Vets to get help with their problems, Pimentel decided to dedicate his life to raising awareness about the needs of people with disabilities.

Official Site (uses Flash, not fully accessible):
http://www.musicwithinmovie.com/

The official site says: Call 800-445-4641 or email jpapier@mgm.com for more information on how to buy block tickets or buy out a screening for your organization, family, and friends.
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The Good, the Bad and the Ugly [Oct. 13th, 2007|05:57 pm]
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[Current Mood | amused]

Listen:




For reference:

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Lookwell [Sep. 27th, 2007|11:42 am]
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[Current Mood | amused]



I'm behind the curve, so I've just found out about Lookwell, a kooky television pilot written and produced by Conan O'Brien and Robert Smigel in the early 90s.  The internet likes it, but the internet always likes Adam West.  I'd watch it, too.
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QotD [Sep. 3rd, 2007|09:55 pm]
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[Current Mood | amused]

"Also, there's not a tactful way to translate lyrics like 'nature's body lotion'"

No, I don't think many languages have a simple way to convey the smoothness of one Mr. Barry White.
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